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Alek Komarnitsky’s Controllable Christmas Lights for Celiac Disease
One of the things we enjoy the most about this time of year is Alek’s Controllable Christmas Lights. You may recall last year we told you about Alek and his lovely wife Wendy how they raise money for Celiac Disease research at the University of Maryland. They do this because they have two sons who live with the disease, a digestive disorder in which foods containing gluten cause an immune-mediated toxic reaction if eaten. The disease affects almost one percent of Americans, though it is believed to be under-diagnosed.
Over the years millions around the world have viewed the Komarnitsky’s lighting display. This year so far they count viewers from 148 countries have seen the more than twenty thousand *lights used in the displays.
*Note for the ecologically minded: The lights are wind powered and carbon neutral.
According to Alek, electronic lighting mastermind, former admitted prankster, husband to Wendy, and father of two great boys, Dirk and Kyle, who assist their father in the lighting design,; the good news is Celiac Disease is treatable when following a special diet, “…but the (gluten-free) diet is a pain in the butt.”
The great thing about this Colorado family is they help others by spreading holiday joy and raising money and awareness of this disorder while they help themselves by supporting research that will someday provide a cure so the children can eat and enjoy a not so stringent diet.
Take time to visit Alek’s site. Remember they are in Boulder, Colorado in Mountain Standard Time. If you’re on the East Coast and it’s dark at 530pm it’s still daylight in Colorado ’cause it’s only 330pm there. Have some family fun playing with the lights then make a Tax Deductible donation.
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